In January of 2009, we established the Emma Bursick Memorial Fund (EBMF). The mission of the EBMF is to promote public awareness about epilepsy and SUDEP, and to promote and support research into the cause and prevention of SUDEP. At the time of Emma’s death, SUDEP was asserted to be a rare occurrence. In the years since her death, SUDEP is now recognized internationally as “the leading cause of death in persons with chronic uncontrolled epilepsy” (Tomson, et al. 2008).
The EBMF currently supports the following:
The good news…we are not alone. The fight against SUDEP has gained significant momentum. Thanks to the efforts of so many, the veil is slowly being lifted. We believe that together, if we all continue to “do something”, we will discover the cause of SUDEP and be able to prevent it in our lifetime.
We are forever grateful for the gift of our Emma. We are forever humbled by the kindness of those who support her legacy.